We Saved You a Seat

A Copper Penny For Your Thoughts: Episode 14

Welcome to the second episode which is a continuation of the conversation with we with Sam and Lauren on August 27th.

 

If you missed the first piece of the conversation please go back and download the episode just prior to this one (A Cooper Penny For Your Thoughts: Episode 13).

A Copper Penny For Your Thoughts: Episode 13 - Transition from What If? to What Now?

Welcome to the the first podcast with Sam and Lauren since Evan passed away.  Sam and Lauren are the face and voice behind A Copper Penny For Your Thoughts and how incredibly honored we are that they share Evan and their journey with us, even in their grief.

 

Our conversation was heartfelt and emotional.  Lauren and Sam wished to bring the raw and real to their community who love them.  They wished to bring the hard conversation of grief to the table. And, they wished to help others who know and feel this type of heartache, to know they are not alone.  

 

They accomplish these goals beautifully in this conversation.

 

Please know we have broken the conversation into four shorter episodes, but have released them all in the same day, if you would like to listen to the entire conversation without delay.

 

#Menkes #EvansArmy #EvanKlingenberg 

A Copper Penny For Your Thoughts: Episode 07 - Private Duty Nursing

Several weeks prior to Evan's passing away, Lauren had sat down with us to discuss something near and dear to her heart, Evan's Private Duty Nursing.  She shares how the nurses are extensions of their family and how they allow her to wear a mom-hat for Evan when they are there, and not just his care takers. 

 

Our conversation about private duty nursing expanded into the subtopic of TEFRA and Lauren does a beautiful job explaining how TEFRA impacted their life and helps them in so many ways!

 

#TEFRA #SelfCare #HomeHealth #PrivateDutyNursing #Menkes #EvansArmy

A Copper Penny For Your Thoughts: Episode 12 - Experiencing Grief with Family

“Grief is the price we pay for love.” - Queen Elizabeth II

 

“Grief is not a disorder, a disease, or a sign of weakness. It is an emotional, physical and spiritual necessity; the price you pay for love. The only cure for grief is to grieve.” – Dr. Earl A. Grollman

 

Having friends and family who you can process the hard with can make all the difference.  This family spoke of and provided us a glimpse into the way in which they process grief together.  This episode is the final release of the conversation we recorded on July 31, 2021.  

 

There may be one or two bonus stories in this podcast as well about the Arnold family, Sibling Love and Support, and Processing Grief!!

A Copper Penny For Your Thoughts: Episode 11 - Favorite Memories From Family

This release of "A Copper Penny For Your Thoughts" episode, is a continuation of the beautiful conversation with Lauren's extended family on July 31, 2021. We are honored to share it with you, and yet, we know you will walk away from this episode experiencing a wide range of emotions, knowing that these memories, this conversation, these very specific words, were recorded just 17 days prior to Evan's passing.

 

When your sister, cousins, aunt, niece & nephew, mom, grandma and littles all come to visit [Lauren] in her home, you know it's going to be a good time; and to have an opportunity, to sit and hear their stories, and share in their expressed love for Evan and each other, you will wish you were part of their family.

 

Big Stories; Big Emotions; Big Memories, BIG LOVE!!!

 

 

#Menkes #Family #NoOneFightsAlone #TakeThePicture #EvansArmy #EvanKlingenberg #ShowUp 

A Copper Penny For Your Thoughts: Episode 10 - No One In This Family Fights Alone

I want to provide our listeners with the very hard and sad news of Evan passing away.

 

Sam and Lauren Klingenberg released a statement on August 17th that read:

 

"It has been and will continue to be the honor of a lifetime to be known as Evan’s parents. We couldn’t be more proud of the way he fought, smiled, giggled, and loved. Which is why it’s so hard to share that Evan passed last night peacefully in our arms as we said we loved him and kissed him goodbye. We find peace and happiness that Evan is no longer ill and is now in arms greater than ours.

 

We will have a longer post of love and reflection when the time is right. We appreciate the love, support and friendship from all of who have kept up with our journey, supported us, prayed for us, and blessed us. Loving and providing for Evan was the easy part. And while we’ve talked about life after Evan, nothing can truly prepare us for the days and weeks to come. We are well taken care of right now and appreciate everyone trying to help in our grief, but we don’t need anything immediate at the moment. Please be considerate if we don’t answer or respond immediately but I promise your kind words, thoughts and prayers don’t go unnoticed or unappreciated.

 

We will post later about celebration of life which will take place in the upcoming weeks.

 

Thank you for everything and for always choosing joy. #EvansArmy"

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The next three "A Copper Penny For Your Thoughts" podcasts we release this week, were recorded on July 31, 2021 when so many of Lauren's family were in town to visit.  This family has a motto, "No One In This Family Fights Alone"!!  

 

 

As you listen to their words and stories, you will hear their love and strength... and you will walk away knowing they do not lie when proclaiming that statement.

 

 

Precious Klingenberg family... you are loved!!!

 

 

#Menkes #EvanKlingenberg #FamilyIsEverything #NoOneFightsAlone

A Copper Penny For Your Thoughts: Episode 09 - Momma D (Part Two)

This episode is full of raw and real emotion. 

 

Momma D and Lauren jump in quickly explaining some of the emotional experiences they've shared, as well as, what has provided Lauren with the most encouragement from her own momma and family!  

 

#Menkes #ShowUp #NoOneFightsAlone

A Copper Penny For Your Thoughts: Episode 08 - Momma D (Part One)

If you think you missed episode 07 of "A Copper Penny For Your Thoughts", you didn't, I promise.  We recorded episode 07 and decided to publish it after this next group of podcasts.  Very recently Lauren had lots of family visit and we had the opportunity to record some of the family stories and their voices.  These first two episodes are strictly Lauren and her mom, Debbie.  We have additional family members join us in the following episodes, which you will not want to miss.

 

With our first release this week we welcome Lauren's Mom, Debbie, also known as, "Momma D" in Evan's world.  You will find this episode to be full of laughs, strength, and reflection.  You will hear a grandmother share her heart and express all the joy of being a grandparent, as well as, gain some insight on what having a grandchild with high medical needs/terminal illness looks like.

 

This episode of "A Copper Penny For Your Thoughts" is fun, uplifting and I know you will enjoy hearing Lauren and Momma D bounce the conversation back and forth.

 

#Menkes #MommaD #Grandparents #Family #13PeopleComingThisWeek #EvanKlingenberg 

RARE Diagnosis: Angelman Syndrome, Episode 03

Our third and final episode with Chelsea gives us a glimpse into the relationship Kenna has with her brother as well as discusses a couple of additional medical challenges Kenna has faced the past few months.

 

For those wishing to follow along in Kenna's journey, feel free to join her Facebook page: Kenna's Journey

 

Thank you Chelsea for sharing Kenna.  You brought awareness, education, conversation and support to many who needed to hear your words and thoughts surrounding Angelman Syndrome.

 

#AngelmanSyndrome #TonicClonicSeizure #HenochSchonleinPurpura #HSP #JuvenileArthritis 

RARE Diagnosis: Angelman Syndrome, Episode 02

Join us today as we continue our conversation with Chelsea.  She provides us with information about Angelman Syndrome from a parent perspective and shares with us some wonderful resources which have been extremely helpful to/and for her and her family.

 

We also hear from Chelsea about some unique to Kenna health concerns that have plagued her for several months.  Chelsea describes what it was like trying to be the advocate Kenna needed.

 

Resources Mentioned:

FAST: Foundation for Angelman Syndrome Therapeutics:   (https://cureangelman.org/)

Angelman Syndrome Foundation: (https://www.angelman.org/)

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What is Angelman Syndrome?

Angelman syndrome (AS) is a rare disorder caused by the loss of function of a single gene and affects approximately 500,000 people worldwide.

Symptoms typically become noticeable around the age of 6-12 months and may include difficulty suckling and eating, gastrointestinal issues, delayed crawling and babbling, balance and motor impairment, and seizures. Some individuals never walk, and most do not speak. And while they require continuous care, they have a normal life expectancy and a distinctly happy demeanor, characterized by frequent laughing, smiling and excitability.

 

#AngelmanSyndrome #FAST #ASF #Genetics #RARE