We Saved You a Seat
Jeremy Warren with Dads On Special Assignment (DOSA)

Jeremy Warren with Dads On Special Assignment (DOSA)

June 17, 2022

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Happy Father's Day to the very special dads out there!!  This podcast is for YOU!!

 

This podcast is certainly for everyone, but especially our DADS!!!  Today we have as our guest, Jeremy Warren, Executive Director, of Dads on Special Assignment or DOSA.

 

Jeremy hosts a variety of activities, groups, and gatherings designed to help remind dads they are not alone in their journey of parenting a child with special health care needs or disabilities.  Dads On Special Assignment (DOSA) started with Jeremy and a few dads in his church as a ministry and has expanded into the community to help support the amazing dads who have been given a special assignment.

 

We are thankful for Jeremy and what he does to support dads and we are sure you will want to hear his words and heart today!  You will hear his passion, purpose and a little about, Landon, his inspiration.

 

Dads On Special Assignment: https://dosausa.org/

Reese and Ryleigh: Twins, 26 Weeks, Preterm Premature Rupture of Membranes (PPROM), Twinless Twin

Reese and Ryleigh: Twins, 26 Weeks, Preterm Premature Rupture of Membranes (PPROM), Twinless Twin

May 23, 2022

On October 3, 2019, Ryan and Lindsay Jones delivered their precious daughters Reese and Ryleigh at just 26 weeks gestation. 

 

While Reese was rushed to the NICU, weighing just 1 lb, 14 oz; her sister, Ryleigh was held and loved on for the next few hours by her parents, who said hello and goodbye to their sweet girl within those short three hours of her life.

 

Today you hear the beautiful words of Lindsay!! You hear her story and desire to bring awareness, conversation, and support to others who may be walking through this very difficult journey of twinless-twin-loss.

 

We are so thankful for Ryan, Lindsay and their girls!!

 

#Twins #ReeseAndRyleigh #26Weeks #MicroPreemie #PPROM #PretermPROM #PrematureRuptureOfMembranes #InfantLoss #TwinlessTwin #Support 

Maternal Mental Health Awareness Week 2022: Part Two - James Craig, MSW, LCSW

Maternal Mental Health Awareness Week 2022: Part Two - James Craig, MSW, LCSW

May 6, 2022

We are certain you will truly enjoy today's conversation! As we continue our discussion on Maternal Mental Health, we highlight today, how you can bring awareness and support to your sister, friend, cousin, brother and others in your life who might be experiencing the number one complication from pregnancy and birth, a perinatal mood and anxiety disorder.

 

James frequently says, "It's so important to reduce stigma and talk about mental health as much as physical health; it's not "them" it's your sister, friend, neighbor... Not them, but "us". When you have any new parents in your life, reach out and ask not only about the new baby, but how are they? Can you schedule time to hold the baby so mom can take a break? Could you set times to call or text each week so they can talk to another adult and feel more like themselves?"

 

James shares with us how we can get involved in our community and provides some wonderful tools which are available through the Oklahoma State Department of Health Maternal Child Health website.

 

Thank you for partnering with us to bring awareness, conversation, support, and education this week on the subject of Maternal Mental Health.

 

Community Engagement Opportunities:

OKC PSI Climb Out of The Darkness Walk: https://climbout2022.causevox.com/team/team-okc

 

Tulsa PSI Climb Out of The Darkness Walk Info: https://climbout2022.causevox.com/team/team-tulsa

 

Resources Mentioned:

Postpartum Plan:  https://oklahoma.gov/content/dam/ok/en/health/health2/aem-documents/family-health/improving-infant-outcomes/maternalmentalhealth/Postpartum%20Plan_fillable.pdf

 

Mothership Rising App: https://www.mothershiprising.com/how-it-works/

 

Family Video Stories from Oklahoma: https://vimeo.com/showcase/6597453/embed

 

Maternal Mental Health Website: https://oklahoma.gov/health/family-health/improving-infant-outcomes/maternal-mental-health.html

 

Postpartum Support International: https://www.postpartum.net/

 

Oklahoma Perinatal Quality Improvement Center: https://opqic.org/

 

The Blue Dot Project:  https://www.thebluedotproject.org/mmhweek2022

 

#MaternalMentalHealth #PSI #BirthingComplication #OPQIC #MCH #MomsMindsMatter #COTD #ClimbOutOfTheDarkness #MMHWeek2022 #MakingOverMotherhood

 

 

Maternal Mental Health Awareness Week 2022: Part One - James Craig, MSW, LCSW

Maternal Mental Health Awareness Week 2022: Part One - James Craig, MSW, LCSW

May 2, 2022

May is Mental Health Awareness Month and Maternal Mental Health Awareness Week is Monday, May, 2 - Sunday, May 8, 2022.

 

Today, as we kick off Maternal Mental Health Awareness Week, We Saved You A Seat visits with James Craig, MSW, LCSW and Public Health Social Work Coordinator for the Oklahoma State Department of Health in Maternal Child Health. 

 

In part one of our two-part podcast release this week, James helps us define what Maternal Mental Health is and gives us a clear understanding of when we should seek additional support from professionals who specialize in perinatal mood and anxiety disorders (PMADs). 

 

Thank you, James, for providing us with information today that helps us understand maternal mental health and equips us with the tools to know where to find the best types of support for the #1 complication of pregnancy and childbirth.

 

 

Resources Mentioned: 

Maternal Mental Health Website: https://oklahoma.gov/health/family-health/improving-infant-outcomes/maternal-mental-health.html

 

Postpartum Support Internation: https://www.postpartum.net/

 

Oklahoma Perinatal Quality Improvement Center: https://opqic.org/

 

The Blue Dot Project:  https://www.thebluedotproject.org/mmhweek2022

 

#MaternalMentalHealth #PSI #BirthingComplication #OPQIC #MCH #MomsMindsMatter 

 

Meningitis Awareness Day Family Story with Heather Pike

Meningitis Awareness Day Family Story with Heather Pike

April 20, 2022

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Heather Pike, Associate Director of the Oklahoma Family Network shares the "why" behind what she does professionally and personally.  In our latest episode of We Saved You A Seat, Heather walks us back 23 years ago when her son, Layton, was very sick and ultimately, diagnosed with meningitis. 

 

Heather discusses the impact meningitis had on Layton's developmental milestones, the impact it had on his little 11-month-old body and shares how important meaningful resources were to her, as well as her desire to help guide families to those wonderful resources and helpers in our community.

 

Some of the resources she highlights:

SoonerStart:  https://oklahoma.gov/health/family-health/sooner-start.html

Hearts For Hearing:  https://heartsforhearing.org/

DRS Resource:  https://oklahoma.gov/okdrs.html

Become a Supporting Parent:  https://oklahomafamilynetwork.org/what-we-do/become-a-supporting-parent/

 

For More Information on Meningitis:  https://www.meningitis.org/

 

Trisomy 21/Down Syndrome Awareness with Jamese Siranga

Trisomy 21/Down Syndrome Awareness with Jamese Siranga

March 23, 2022

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Today we have the privilege of introducing you to Oklahoma Family Network's newest staff member and sharing a small portion of her experience and perspective learning her daughter has Down Syndrome.

This is a real and honest conversation that will touch your heart.

We Saved You A Seat, sat down with Jamese Siranga on March 21 (World Down Syndrome Day) and discussed the impact Down Syndrome has on their beautiful family.  You will walk away from today's podcast with a full heart after hearing from Jamese and want to hear more from her, as she shares her family and daughter, Selah, with us.

Resources Mentioned:
SoonerStart is Oklahoma’s early intervention program designed to meet the needs of families with infants or toddlers (ages birth to 3 years old) with developmental delays and/or disabilities in accordance with the Individuals with Disabilities Education Act (IDEA). The program builds upon and provides supports and resources to assist family members to enhance infants or toddler’s learning and development through everyday learning opportunities. For more information:  https://oklahoma.gov/health/family-health/sooner-start.html

Song by India.Arie: I Am Not My Hair https://g.co/kgs/rqMSL2

 

#WorldDownSyndromeDay #DownSyndrome #Trisomy21 #TrisomyAwareness #SoonerStart #OklahomaDownSyndromeAssociation #IndiaArie

 

Trisomy 18 Awareness with Caiti Franklin, Part Three

Trisomy 18 Awareness with Caiti Franklin, Part Three

March 18, 2022

WHAT IS TRISOMY 18?

Trisomy 18, also known as Edwards syndrome, is a condition that is caused by an error in cell division, known as meiotic disjunction.  When this happens, instead of the normal pair, an extra chromosome 18 results (a triple) in the developing baby and disrupts the normal pattern of development in significant ways that can be life-threatening, even before birth.  A Trisomy 18 error occurs in about 1 out of every 2500 pregnancies in the United States and 1 in 6000 live births.  The numbers of total births are much higher because it includes significant numbers of stillbirths that occur in the 2nd and 3rd trimesters of pregnancy.

Unlike Down syndrome, which also is caused by an extra chromosome, the developmental issues caused by Trisomy 18 are associated with more medical complications that are more potentially life-threatening in the early months and years of life.  Studies have shown that only 50% of babies who are carried to term will be born alive, and baby girls will have higher rates of live birth than baby boys.

At birth, intensive care admissions in Neonatal Intensive Care Units (NICU’s) are routine for infants with Trisomy 18.  Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.

Some infants will be able to survive to be discharged from the hospital with home nursing support to assist with care by the parents. And although 10 percent or more may survive to their first birthdays, there are children with Trisomy 18 that can enjoy many years of life with their families, reaching milestones and being involved with their community.  A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independently without full time caregiving. (Trisomy 18 Support at Trisomy 18 Foundation)

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Today you hear a mother share what she knows about Trisomy 18 and how it impacted her and her son, Carter.  She shares what she knows from a parent perspective and what having another baby after Carter was like.

 

Thank you, Caiti, for giving us a glimpse into your journey with Carter and sharing how trisomy 18 impacted your life.  Thank you for bringing awareness, conversation and education to a topic that is rarely discussed and few people know about.

 

#Trisomy18 #T18 #EdwardsSyndrome #ParentPerspective #Trisomy18AwarenessDay

Trisomy18 Awareness with Caiti Franklin, Part Two

Trisomy18 Awareness with Caiti Franklin, Part Two

March 17, 2022

We welcome back and continue our conversation with Caiti about her son Carter, who we learned yesterday was diagnosed with Trisomy 18.  

 

In today's conversation, she shares her experiences calling 911, hospital visits, and ultimately Carter's passing.  Today she shares her heart and some of the very hard choices that she and her husband made for Carter.  Today she shares with us and talks about things she rarely gets the opportunity to share.

 

We know you will listen with compassion as a mom shares her heart and the pain associated with the death of her son.

 

#Trisomy18 #T18 #EdwardsSyndrome #911 #PICU 

 

 

Trisomy18 Awareness with Caiti Franklin, Part One

Trisomy18 Awareness with Caiti Franklin, Part One

March 16, 2022

Meet Caiti... Meet her husband, Dillon, and daughter Chloe Bea... and today you have the incredible privilege of meeting and hearing about their first born, their son, Chloe's brother, Carter... 

 

Today we release part one of our three-episode conversation with Caiti, shedding light into their NICU journey with their son Carter as doctor's suspected something was wrong, but couldn't definitively say, until genetic testing came back.  

 

Caiti walks us through her delivery, diagnosis, and transition home on palliative care. 

 

#Trisomy18 #T18 #EdwardsSyndrome #NICU #GeneticTesting #PediatricPalliativeCare #PediatricHospice #SoMuchLove #Carter 

CHD Ebstein Anomaly Family Story with Natalie Alexander, Part Two

CHD Ebstein Anomaly Family Story with Natalie Alexander, Part Two

March 10, 2022

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"I don't understand why some people, and some children, are afforded these beautiful miracles, and others aren't. I'll never be able to reconcile it because they all deserve it, they all deserve to live. They don't deserve to go through all of this pain, to be stuck with all these needles all the time..." - Natalie Alexander

 

 

#CHD #CongenitalHeartDefect #BrokenHeart #Bandaids #NoCure #HeartsOfSteel 

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